The amazing Miss Mia does it again! After Mia had surgery to remove a large tumor in her brain on Valentines Day, she recovered quickly and without complication. She went home from the hospital after six days and visited at school a week and a half after that! The symptoms that alerted us to her brain involvement have resolved.
Three weeks after the surgery, Mia underwent another procedure called gamma knife to target other metastases to her brain. This is a radiation oncology procedure, considered “bloodless surgery,” done under general anaesthesia to precisely target the lesions with an intense beam of radiation, without damaging nearby tissues. She was kept completely still in a halo (like you wear when you break your neck) during the procedure so that MRI pictures could be used in conjunction with the radiation. Unlike her regular radiation therapy, this is a one shot deal. This was all done by an amazing team from Lutheran General Hospital and Alexian Brothers Hospital. There were two neurosurgeons, a radiation oncologist, two anaesthesiologists, a neuroradiologist and an awesome team of nurses and support technicians. When we told Andrew that there were five doctors in the room with Mia he said, “Is that all?”
Speaking of radiation, she has finished with the 5 weeks of radiation to her left thigh with no side effects. She is also back on chemotherapy, which she has been tolerating fairly well. We are still getting our treatment by our great doctors at Lutheran General, who have been working with the rhabdomyosarcoma expert at Children’s Memorial.
The plan for now is to just keep on with this chemo for as long as we can, or until things change. We will be doing regular scans to follow her progress. All this treatment is obviously not without complications, but for now we just need to get through today. Our daughter amazes us every day!